A LITTLE ABOUT MYSELF
I am a 13 year old girl living with my family in Tonypandy.
I have a genetic defect and have also been diagnosed with MPEI (Migrating Partial Epilepsy in Infants) with is a very rare condition and I am the only child with MPEI in South Wales. I am a wheelchair user and I use a hoist. This means I am sensitive to flashing lights, sunlight and hot and cold temperatures. I have a lot of seizures, which can be triggered by movement or if I am over stimulated and can last around 10-20 seconds. I am unable to control my own temperature, have no head control, can’t sit or walk and I am tube fed with a stoma bag. I need to be treated very gently as I have brittle bones. I have many different types of seizure so my father will teach you the signs to look for.
PURPOSE OF JOB
To provide my Father with support with my daily routine and keep me company. My Father will be in the house when you are here. This will enable my Father to have a bit of respite.
PLACE OF WORK
At my home address in Tonypandy
HOURS OF WORK
2x 5 hours shifts over the weekend which we are flexible with time
RATE OF PAY
£14.00 per hour
TASKS INVOLVED
1. Help me with my daily routine
2. Change my bedding
3. Mixing feeds up (elemental feeds)
4. Sitting with me for short periods of time but this won’t be needed straight away, only after you are settled and confident in the job
5. Reading to me
6. Putting sensory toys in my hand
7. Personal care tasks such as changing, bathing and dressing
8. Keeping me company whilst my Father has some respite in the house
TYPE OF PERSON REQUIRED
9. Somebody who will be able to work flexibly
10. Knowledge of working with children with extra needs would be an advantage
11. A driver for occasional trips in your car
12. Somebody who is outgoing and chatty
13. Experience of dealing with seizures would be an advantage
14. Willing to attend training including first aid