Job overview
Band / NF - Related Schwannomatosis, CNS – Part-Time/ Permanent Position - ( hours/week).
Location: Oxford - A fantastic opportunity has arisen for an experienced Clinical Nurse Specialist to join our dynamic and forward-thinking team within the Nationally Commissioned NF service. You will be part of a small, highly skilled team of three NF Nurse Specialists, delivering expert care to patients and families affected by NF-related Schwannomatosis.
Based in Oxford, you will also contribute to outreach activities such as school liaison and professional events, including conferences.
This is a varied and rewarding role, combining consultant-led clinics. You will play a key role in supporting patients receiving bevacizumab treatment, attending oncology clinics to provide clinical input and ensure oncologists are fully informed of patient needs. You will also contribute to NF MDTs, coordinating complex care pathways and advocating for patients across multidisciplinary teams.
The successful candidate will be motivated and proactive, with a passion for delivering high standards of evidence-based care. You will develop close and trusting relationships with patients and their families, often over many years, providing expert advice, education, and emotional support throughout their care journey. Strong communication skills are essential, as the role involves navigating sensitive and complex conversations with patients and professionals across a range of settings.
Main duties of the job
Provide specialist clinical assessment and monitoring for individuals with Neurofibromatosis Type, ensuring early detection of neurological, audiological, and ophthalmic changes. Coordinate complex care pathways, including MRI surveillance, neurosurgical and oncology reviews, and input from audiology, ophthalmology, and therapy services. Act as an integral member of the MDT, supporting effective communication across neurosurgery, neurology, oncology, genetics, audiology, and allied health professionals.
Deliver comprehensive education on NF, tumour progression, treatment options, and hearing‑preservation strategies, while guiding patients and families through genetic discussions. Provide advanced symptom management for balance disturbance, facial nerve dysfunction, tinnitus, neuropathic pain, visual impairment, and fatigue. Monitor patients receiving treatments such as bevacizumab, stereotactic radiosurgery, and clinical trial therapies, ensuring timely escalation for new or worsening symptoms. Contribute to teaching, training, and service development, maintaining specialist expertise in NF and rare disease management. Offer emotional and psychological support throughout the patient journey. Lead or support audit, research, and service evaluation activities, and work with rehabilitation teams to optimise mobility, sensory adaptation, and functional independence. At Band level, provide leadership, mentorship, and quality‑improvement initiatives within the NF service.
Working for our organisation
Oxford University Hospitals NHS Foundation Trust is one of the largest NHS teaching trusts in the country. It provides a wide range of general and specialist clinical services and is a base for medical education, training and research. The Trust comprises four hospitals - the John Radcliffe Hospital, Churchill Hospital and Nuffield Orthopaedic Centre in Headington and the Horton General Hospital in Banbury.
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If you want to make a difference with us, come and join our team. Together, we will uphold the highest standards of care and professionalism.