Job overview
* To support the service dedicated to the care of children and young people with major haemoglobinopathies and other long term non-malignant haematological condition
* The post holder will work with the network multidisciplinary team to provide expert clinical care and management for children with major haemoglobinopathies, and their families and carers. He/she will ensure care is given that recognises not only individual medical needs but also their social and developmental needs. The post holder will be expected to play an active role in continuing to develop safe and effective network services, and to assist in designing patient pathways to ensure optimal care in the best environment. Along with the rest of the clinical team, he/she will be
responsible for ensuring the national peer review standards for haemoglobin disorders are met and maintained
* In addition to his/her managerial and strategic role, the post holder will be expected to play an active role in the day-to-day care of patients with haemoglobin disorders and other non-malignant haematological disorders, with a view to running independent clinic assessments, and providing expert advice to non-specialists.
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Clinical Care Management: Administering specialized treatments such as regular blood transfusions and monitoring for adverse reactions. They provide care during outpatient visits, hospital stays, and in the community.
Case Coordination: Acting as a central contact point for families to navigate complex care, reducing, and sometimes avoiding, hospital admissions.
Education and Training: Providing comprehensive education to children, families, and schools about the condition, treatment, and self-management. They also develop educational programs for staff.
Holistic Support: Addressing the emotional, psychological, and practical needs of the child and family, offering support to reduce feelings of being overwhelmed.
Multidisciplinary Team (MDT) Working: Collaborating closely with consultants, community teams, and specialists to develop and implement care plans.
Service Development: Developing nursing protocols, patient information documents, and maintaining databases.
Transition Care: Supporting adolescents as they transition to adult
Working for our organisation
St George's, Epsom and St Helier University Hospitals and Health Group cares for a population of four million people in South West London and North East Surrey. Our sites include St George's Hospital, one of 11 major trauma centres in the UK and the largest healthcare provider and major teaching hospital in the area; St Helier Hospital, home to the South West Thames Renal and Transplantation Unit and Queen Mary's Hospital for Children; and Epsom Hospital, home to the South West London Elective Orthopaedic Centre (SWLEOC).
After years of collaboration, our two Trusts became a hospitals group in 2021. While remaining as two separate Trusts, being a hospitals group will help us to collaborate more closely on research, and the development, education, and training of our 17,000-strong workforce.
At gesh we are committed to supporting flexible working arrangements. Applicants are encouraged to discuss any flexibility they may need during the recruitment process.
Detailed job description and main responsibilities
St George's has a long-established paediatric hematology service caring for children with haemoglobinopathies, hemophilia and other inherited or long-term non-cancer blood disorders across SW London, Surrey and Sussex areas. This is the first appointment of a Non Malignant/ Haemoglobinopathies paediatric nurse specialist.
The post is supported by Roald Dahl's Marvellous Children's Charity, bringing its experience in supporting nurses looking after children with long-term health conditions. As a Roald Dahl nurse the post holder will network with other Roald Dahl non-malignant hematology nurses, have support for
professional development and attend the annual Roald Dahl nursing conference.
The nurse will work as part of the team in providing patient reviews, school liaison and education, patient and family community support, GP support, and establishing a robust nursing education programme. They will support protocol and patient information development, develop nursing documents to support the care and management of patients; develop and maintain patient databases. The CNS will work closely with children attending day care or admitted as inpatients and act as the key worker for transition from paediatric to adult services.
Your recruitment team
The NHS South West London Recruitment Hub is your dedicated recruitment team, here to support you at every stage of the process. If you have a query, please contact us:
E: [email protected]
Your application
Please ensure your supporting statement clearly reflects the job description and person specification, as shortlisting will be based on these criteria.
Please refer to the latest UKVI guidance and ensure you have the appropriate right to work before applying for this role.
Use of Artificial Intelligence
We kindly ask that you avoid using AI tools to draft your application. We value authentic, individual responses that reflect your own experience and communication style.
References
Please provide a minimum of 3 years' employment and/or education history, including professional email addresses (not personal accounts such as Hotmail or Gmail). If you cannot provide these, please inform the interview panel to avoid delays in pre-employment checks.
Closing date
To help us manage recruitment efficiently, some vacancies may close early once we have received a sufficient number of applications.
Shortlisting
If you are successfully shortlisted, you will be contacted by email or SMS from the South West London Recruitment Hub. Please check your registered TRAC email regularly.
Application feedback
If you do not hear from us within four weeks of the closing date, please assume your application has not been successful on this occasion.
Safeguarding and DBS Checks
We are committed to safeguarding children and vulnerable adults. For roles with direct access to these groups, an Enhanced Disclosure and Barring Service (DBS) check will be required. All staff are expected to understand and uphold their safeguarding responsibilities as part of their role.