The role
Spinal Muscular Atrophy UK’s Community Support Team provides practical guidance and emotional support to adults, children, young people, and their families affected by any form of SMA across the UK.
As a Community Support Practitioner, you will play a key role in delivering compassionate, confidential, and responsive support at all stages of life. This may include times of particular challenge or change, such as receiving an SMA diagnosis, or navigating transitions into nursery, school, higher education, employment, or independent living.
Your work will be varied and person‑centred. You may be directly supporting families and individuals with issues relating to care packages, housing, equipment, education, access to treatments, and welfare benefits.
To provide the highest standard of service, you will collaborate closely with colleagues across the charity, including those specialising in information provision, advocacy, and community engagement, ensuring families and individuals feel well‑informed, supported, and connected.
You will hold a professional qualification and have a background in education, health, social care, or disability. You will work from home and connect virtually with the team with flexibility to attend meetings at our office base in Stratford upon Avon as required.
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