SWAN Clinical Nurse Specialist
The closing date is 27 November 2025
Do you want to make a difference in the lives of children and young people with undiagnosed complex syndromes?
Great Ormond Street Hospital NHS Foundation Trust has an exciting and unique opportunity for a Roald Dahl Complex Medical Care SWAN (Syndromes without a name) Clinical Nurse Specialist in partnership with The Roald Dahl's Marvellous Children's Charity
Roald Dahl's Marvellous Children's Charity: www.roalddahlcharity.org
Main duties of the job
You will be responsible for supporting and developing a collaborative and high-quality service for children and young people (CYP) with medical complexity within the acute children's service. You will support effective communication and develop pathways and processes across boundaries and organisations both locally and regionally.
You will focus on improving planning and support for CYP with complex medical conditions, including effective pre‑admission, transfer and discharge planning, aiming to reduce hospital stay length and readmission, and promote coordinated, safe and high‑quality care.
This is a unique 2‑year fixed term opportunity to act as an ambassador for the Roald Dahl Marvellous Children's Charity and to be a voluntary representative of the charity when required to represent and promote the role and links between the NHS and RDMCC.
There are also opportunities to join and contribute to RDMCC's internal communication platform (Workplace from Meta) with encouragement from the NHS.
About us
GOSH is committed to recruiting the best person for the job, based solely on their ability and individual merit as measured against the criteria for the role; through a process that is fair, open, consistent and free from bias and discrimination.
We are committed to being a diverse and inclusive employer and foster a culture where all staff are valued, respected and acknowledged. All applicants will receive consideration for employment without regard to race, colour, national origin, religion, sexual orientation, gender, gender identity, age, disability status or length of time spent unemployed.
We particularly welcome applications from BAME communities, people with disabilities and/or long‑term health conditions and LGBT+ community members.
We have policies and procedures in place to ensure that all applicants and employees are treated fairly and consistently. We are proud to be accredited as a Disability Confident Employer, a member of Business Disability Forum and a Stonewall Diversity Champion.
We have active and Executive supported BAME, LGBT+, Allies, Disability and Long-Term Health Conditions and Women’s staff networks. Staff networks are employee‑led groups formed around interests, issues and a common bond or background. Staff network members create a positive and inclusive work environment at Great Ormond Street Hospital by actively contributing to the Trust’s mission, values and efforts specific to inclusion. All of our staff networks are open to any employee.
Job responsibilities
The full job description provides an overview of the key tasks and responsibilities of the role, and the person specification outlines the qualifications, skills, experience and knowledge required. For both documents please view the attachment below.
Person Specification
Skills/Abilities
* Excellent communication/counselling skills
* Excellent managerial, leadership and organisational skills
* Able to motivate and develop a multi‑professional team
* Able to problem solve and initiate change
* Able to work across professional team and organisational boundaries
* Ability to deal with conflict situations
* Ability to work as an integral part of the multidisciplinary team
GOSH Culture and Values
* GOSH Values
* On the relevant part of the NMC register i.e Children's registered
* Evidence of ongoing, dynamic continuing professional development within the specialty, linked to demonstrable clinical competencies
* Possession of a relevant honours degree
Experience/Knowledge
* Minimum 2 years at band 6 or 7 level or equivalent within relevant clinical environment
* Experience in looking after children with syndromes and medical complexity
* Demonstrates Compassion In Practice
* Understanding of professional and current issues in children’s nursing
* Understanding of resource management, health and safety, clinical risk and quality issues
* Child Safeguarding Experience
* Experience in managing patients in an outpatient, day case or community setting
* Experience in liaising with charities and patient advocacy groups
* Relevant knowledge to current practice in genetics
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
Great Ormond Street Hospital for Children NHS Foundation Trust
£56,276 to £63,176 a yearInclusive per annum pro rata
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