Chronic Fatigue Syndrome (CFS) / ME Clinical Coordinator
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Chronic Fatigue Syndrome (CFS) / ME Clinical Coordinator
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Job Summary
The Nottinghamshire Young Persons' CFS/ME Service promotes the management of young people by local community teams under the guidance of Consultant Paediatricians at NUH.
Job Summary
The Nottinghamshire Young Persons' CFS/ME Service promotes the management of young people by local community teams under the guidance of Consultant Paediatricians at NUH.
Early recognition of CFS/ME in Primary Care can prevent the need for admission and referral to hospital. There will however be patients for whom local services require the support of colleagues within the specialist team and in very rare cases the young person may require hospital admission. Therefore, the primary focus of this post is to deliver therapy led clinics (NICE recommendations) coordinate, develop services for young people with CFS/ME who are referred to NUH.
This Will Be Achieved Through:
Education & Training.
Ongoing development and maintenance of care pathways within Primary, Secondary and Tertiary care (Health, Education and Social Care).
Sign posting young people, their carers and professionals to appropriate services.
Advice and support to professionals supporting young people with CFS/ME.
Direct Clinical Management from diagnosis to discharge (if required this will include transition to other services).
Working strategically at local, regional and national levels e.g. Commissioning of Services, Development and implementation of guidelines in collaboration with the Clinical Network Coordinating Centre (CNCC) (based in Derby).
Involvement in Research and Audit.
Main duties of the job
Coordinate and manage the care of young people with CFS/ME to meet their holistic needs, working autonomously and as part of a wider multi-disciplinary team (MDT).
Update and develop literature and teaching material for:Young People (11 - 19 years whilst in education) Younger Patients accepted in extreme circumstances and at the request of Consultant Paediatrician and NUH.Families and carersProfessionalsVoluntary agencies
Work with young people and their parents/carers, giving guidance in relation to specific approaches and options in the management of CFS/ME:To enable independent self-management of presenting symptoms.Comprehensive assessment at first point of contact to determine management plan.Provide appropriate rehabilitation packages in line with patient and family need.
Contribute to the development and management of the wider service provided by the Clinical Network Coordinating Centre (CNCC) for example the effective use of IT to ensure accessible information to all young people with CFS/ME and professionals.
Appropriate liaison with the young person's named Consultant and joint consultations where appropriate.
Act as an advocate for young people with CFS/ME and their parents/carers.
About Us
With over 19,000 staff, we are one of the biggest employers in the city with a central role in supporting the health and wellbeing of our local population. We play a leading role in research, education and innovation.
Come and join our wonderful team at NUH. We are big believers in diversity and welcome new ideas to help develop our team in order to deliver world class healthcare to the vast patient populations we serve. With endless personal development opportunities available, at NUH we will endeavour to turn your job into a career!
We particularly welcome applications from people who identify as Black, Asian and Minority Ethnic, or Disabled, as we are striving to be better represented at NUH.
Details
Date posted
13 June 2025
Pay scheme
Agenda for change
Band
Band 7
Salary
£46,148 to £52,809 a year per annum pro rata
Contract
Permanent
Working pattern
Part-time
Reference number
164-7105702-A
Job locations
Queen's Medical Centre
Derby Road
Nottingham
NG7 2UH
Job Description
Job responsibilities
Work in partnership with young people and their parents / carers through:Support Groups / education awareness sessionsSatisfaction surveysService DevelopmentAttending relevant conferences and network meetings (peer support and shared learning)Management of a telephone service to provide advice, support and coordination of services.
Communication of complex information, which will often be required in highly emotiveand often hostile environments.Responsibility for a clinical coordinator led clinic within the Trust for Young people with CFS/ME.
Organise and facilitate case conferences as required.
Job Description
Job responsibilities
Work in partnership with young people and their parents / carers through:Support Groups / education awareness sessionsSatisfaction surveysService DevelopmentAttending relevant conferences and network meetings (peer support and shared learning)Management of a telephone service to provide advice, support and coordination of services.
Communication of complex information, which will often be required in highly emotiveand often hostile environments.Responsibility for a clinical coordinator led clinic within the Trust for Young people with CFS/ME.
Organise and facilitate case conferences as required.
Person Specification
Qualifications
Essential
* NMC Paediatric Nurse
* Physiotherapist Paediatric
Desirable
* OT Paediatric
Experience
Essential
* Managing Risk
* Worked with Children and Young People
Desirable
* Chronic Fatigue Experience
Communication
Essential
* Effective Communication Skills
* Experience with Independent Working and MDT
Desirable
* Good Team Building and Leading Skills
Physical Skills
Essential
* Computer Literate
* Experience in Formulating Reports and Care Plans
Desirable
* Travel to Patient Homes and Schools
Person Specification
Essential
* Computer Literate
* Experience in Formulating Reports and Care Plans
Desirable
* Travel to Patient Homes and Schools
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
Certificate of Sponsorship
Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).
From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).
UK Registration
Applicants must have current UK professional registration. For further information please see NHS Careers website (opens in a new window).
Additional information
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
Certificate of Sponsorship
Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).
From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).
UK Registration
Applicants must have current UK professional registration. For further information please see NHS Careers website (opens in a new window).
Employer details
Employer name
Nottingham University Hospitals NHS Trusts
Address
Queen's Medical Centre
Derby Road
Nottingham
NG7 2UH
Employer's website
https://www.nuh.nhs.uk/ (Opens in a new tab)
Employer details
Employer name
Nottingham University Hospitals NHS Trusts
Address
Queen's Medical Centre
Derby Road
Nottingham
NG7 2UH
Employer's website
https://www.nuh.nhs.uk/ (Opens in a new tab)
Seniority level
* Seniority level
Mid-Senior level
Employment type
* Employment type
Part-time
Job function
* Job function
Other
* Industries
Hospitals and Health Care
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