This assignment will be fulfilled at 30 hours per week across MondayThursday. The successful applicant will be required to visit the charity's Twickenham office at a minimum of once per week. Fowlers Syndrome UK (FSUK) is the only charity in the world dedicated to women (and afab) with Fowlers Syndrome or Chronic Idiopathic Urinary Retention; a life-changing and poorly understood bladder condition that causes full or partial urinary retention. The CEO is excited to welcome a proactive, purpose-driven, and resourceful Communications and Engagement Lead to join their small and purposeful team and support the next phase in their journey. In this multi-faceted role, you will ensure that women affected by Fowlers Syndrome, clinicians, researchers, and the wider public are intimately connected to the charitys work.You will enable smoother pathways for women seeking support and for healthcare professionals looking to access educational resource, while also leading on a range of communications activities and awareness campaigns. You will take responsibility for coordinating and facilitating online patient groups, supporting in-person events, and helping to manage FSUKs Patient Council. Tasked with overseeing the development of content such as patient resources, you will also advance wider engagement across projects and research programmes and ensure that communications, whether via newsletters, social channels, or the website, reflect the charitys voice and values. While having strategic oversight and leading on the management of FSUKs digital platforms, including their WordPress website and database consisting of patients and supporters, you will also maintain the charitys fundraising pages. Through managing FSUKs social platforms, you will at times also interact with the charitys online community, responding with empathy as you engage and signpost to appropriate services such as the FSUK helpline, ensuring people feel heard, informed, and supported. Lastly, raising awareness of FSUK will be one strand of the communications output, however the primary focus is to enable stronger connections and deepen engagement and trust with their valued community. Emotional intelligence and well defined interpersonal skills are essential, as well as having proficient organisational ability and the aptitude to multi-task when working independently within this small, yet fast-moving team. A background in patient, community, or stakeholder engagement will also be a valuable asset, alongside exposure to working within the health, charity, or research sector. You will have demonstrable experience producing content, alongside a track record of managing digital and social platforms (particularly Instagram). Lived experience of Fowlers Syndrome is not essential but would be a welcome bonus!
If youre eager to play a vital role in nurturing FSUKs patient community, enhancing the digital presence of a growing charity that ensures women living with Fowlers Syndrome feel supported and connected, wed love to hear from you.
Fowlers Syndrome UK welcomes applications from people of all backgrounds and especially anyone with lived experience of FS. We actively encourage interest from racially and culturally minoritised individuals, those who are neurodivergent, part of the LGBTQIA+ community, or living with a disability. Please get in touch if you would like to talk to us about any support that you may need in completing an application.
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