Overview
We are looking for someone to coordinate the UK Primary Immunodeficiency (UKPID) Registry Study, sponsored by the Trust. This multi-site study helps improve diagnostics and shape future treatments for primary immunodeficiency disorders. You\'ll work with the Chief Investigator and study sites to ensure smooth, ethical, and compliant delivery of the registry. Reporting into the Lead Nurse (R&I), your responsibilities will include the following.
Responsibilities
* Oversee daily operations of the UKPID registry across multiple UK sites
* Coordinate onboarding of new sites and support accurate data collection
* Manage sensitive patient data and perform quality assurance checks
* Communicate with team members, respond to queries, and support sub-study development
* Prepare documentation for audits, inspections, and ethical submissions
* Implement tools to enhance data management and reporting
* Provide training and mentorship to new colleagues
* Monitor study progress and escalate challenges
About the employer and commitment to inclusion
At Sheffield Children\'s, we are committed to creating an inclusive environment that celebrates diversity and supports everyone\'s success. We prioritise Equality, Diversity, and Inclusion in our recruitment practices, creating a welcoming space for people of all backgrounds, including ethnic minorities, individuals with disabilities, and LGBTQ+ members. Recognising that inclusivity is an ongoing effort, we review our processes and welcome feedback to enhance our practices. A diverse team strengthens our organisation and the quality of care we deliver. For ideas on how we can improve, please contact our Recruitment Manager at [email protected]. Together, we\'re building a workplace where everyone belongs.
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Qualifications
* A research degree and substantial experience in research coordination
* Knowledge of GCP, regulatory frameworks, and ethical submission processes
* Data management and analytical skills
Additional context
Sheffield Children\'s Research & Innovation Care Group is a vibrant team supporting over 320 paediatric research projects annually. As hosts of both an NIHR Commercial Research Delivery Centre and a Health Tech Research Centre, we are at the forefront of innovation and evidence-based care for children and young people. We work with partners across local, regional, and national levels to deliver physical and mental healthcare in both acute and community settings. Many of our clinicians are nationally and internationally recognised for their expertise. We are proud that 73% of colleagues would recommend Sheffield Children\'s as a place to work, placing us among the top five NHS trusts in England — and the top-ranked trust in the North East and Yorkshire — in the latest NHS Staff Survey. Our nearly 4,000 colleagues bring our CARE values — Compassion, Accountability, Respect, and Excellence — to life every day, creating a kind, welcoming environment where patients and families feel safe and supported. As we approach our 150th anniversary in 2026, we\'re excited to keep building our leadership in children\'s health, improve experiences for patients and staff, and focus on our communities and population health. We also offer excellent benefits to support your wellbeing, with generous annual leave and pension schemes, health and wellbeing programmes, and exclusive discounts, helping you thrive at work and beyond.
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