Job Description
CamRARE is celebrating a decade of progress and impact and is seeking a dynamic Managing Director to lead our next chapter of growth.
As our Managing Director and founding member prepares for her planned retirement, Cambridge Rare Disease Network (CamRARE) is seeking a dynamic and visionary new leader to guide the charity into its next decade. You will drive strategic growth, strengthen partnerships, ensure long-term sustainability, and champion innovation, research, and community impact for people affected by rare and undiagnosed conditions.
You will inspire and empower a passionate and talented team of staff, trustees, volunteers, families and partners, while building strong connections across our networks to expand our reach, visibility, and influence. As an energetic and forward-thinking leader, you will bring the drive and expertise to strengthen partnerships, grow income through innovative fundraising and strategic collaborations, and champion CamRARE as a trusted voice within the rare community and beyond.
Why choose a career at Cambridge Rare Disease Network?
#purpose – We’re on a mission to make life with a rare condition easier through community, collaboration and connections. Your role is to lead this mission to directly contribute to a better future for those living with rare conditions.
#growth – We’re a small, ambitious...