Job summary
The Nottinghamshire Young Persons' CFS/ME Service promotes the management of young people by local community teams under the guidance of Consultant Paediatricians at NUH.
Early recognition of CFS/ME in Primary Care can prevent the need for admission and referral to hospital. There will, however, be patients for whom local services require the support of colleagues within the specialist team, and in very rare cases, the young person may require hospital admission. Therefore, the primary focus of this post is to deliver therapy-led clinics (NICE recommendations), coordinate, and develop services for young people with CFS/ME who are referred to NUH.
This will be achieved through:
1. Education & Training.
2. Ongoing development and maintenance of care pathways within Primary, Secondary, and Tertiary care (Health, Education, and Social Care).
3. Signposting young people, their carers, and professionals to appropriate services.
4. Advice and support to professionals supporting young people with CFS/ME.
5. Direct Clinical Management from diagnosis to discharge (including transition to other services if required).
6. Working strategically at local, regional, and national levels, e.g., commissioning of services, development, and implementation of guidelines in collaboration with the Clinical Network Coordinating Centre (CNCC) based in Derby.
7. Involvement in research and audit.
Main duties of the job
* Coordinate and manage the care of young people with CFS/ME to meet their holistic needs, working autonomously and as part of a multidisciplinary team (MDT).
* Update and develop literature and teaching materials for:
o Young People (11-19 years whilst in education), younger patients accepted in extreme circumstances and at the request of Consultant Paediatrician and NUH.
o Families and carers
o Professionals
o Voluntary agencies
* Work with young people and their parents/carers, providing guidance on management options to enable independent self-management of symptoms.
* Conduct comprehensive assessments at first contact to determine management plans.
* Provide appropriate rehabilitation packages aligned with patient and family needs.
* Contribute to the development and management of the wider service provided by the CNCC, including effective use of IT for accessible information dissemination.
* Maintain appropriate liaison with the young person's named Consultant and facilitate joint consultations as needed.
* Act as an advocate for young people with CFS/ME and their families/carers.
About us
With over 19,000 staff, we are one of the largest employers in the city, supporting the health and wellbeing of our local population. We play a leading role in research, education, and innovation.
Join our team at NUH. We value diversity and welcome new ideas to develop our team to deliver world-class healthcare. We offer extensive personal development opportunities to turn your job into a career!
We particularly encourage applications from individuals who identify as Black, Asian, and Minority Ethnic, or Disabled, as we aim to improve our representation at NUH.
Additional details
* Job posted on: 28 April 2025
* Pay scheme: Agenda for Change
* Band: Band 7
* Salary: £46,148 to £52,809 per annum pro-rata
* Contract: Permanent
* Working pattern: Part-time
* Location: Queen's Medical Centre, Derby Road, Nottingham, NG7 2UH
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