Background
Death, dying and grief affect everyone. Yet we know there is unfairness in who gets support and how good that support is at the end of life. Ethnic minority communities in particular can face barriers to good care due to racism and other forms of prejudice and discrimination.
An innovative five-year project has been funded to understand how we can address racism in palliative and end-of-life care across Bradford and what services can learn from this nationally and internationally.
This post presents an exciting opportunity for three ethnic minority community members from Bradford (Pakistani/Bangladeshi, Black Caribbean, Roma/Eastern European) with experience of palliative and end-of-life care to join our supportive study team. Their role will be to help us understand how to systematically address racism in palliative and end-of-life care.
We are looking for organised, motivated and enthusiastic community researchers.
The successful candidates will work with the Principal Investigator and Senior Research Fellow to help design the study, collect data, support the analysis and help share the findings to ensure the findings have impact.
Job Purpose
The post holders will play a key role in shaping the study's design, recruiting participants, collecting data, supporting the analysis of findings, and sharing results with decision-makers and community members. They will receive training and dedicated support from the principal investigator and senior research fellow.
The post will be based within the world-leading Yorkshire Quality and Safety Research Group (YQSR) at the Bradford Institute for Health Research (BIHR).
The postholders will work on the study on a flexible, as-needed basis. On average, they will work around 4 hours a week – however this will vary from week to week. Some weeks may require no work and some may require a full day's work. The post will be for one year, with the potential for extension depending on the study findings.
The duties include providing feedback on the study proposal and methods, approaching, recruiting and consenting participants, collecting data through workshops, observations and interviews, supporting and feeding back on the analysis of findings, sharing findings and working with partners. Bespoke training will be provided for the community researchers.
We are particularly keen to hear from members of the Pakistani/Bangladeshi, Black Caribbean and Roma/Eastern European communities in Bradford with lived experience of end-of-life care. This can be as a carer, family member or friend.
In order to ensure high quality data are collected for the project the post holders will work alongside the study team.
Our People Charter outlines the behaviours we can expect from one another and what you can expect from Bradford Teaching Hospitals Foundation Trust:
We value people
We are one team
We care
We're keen to meet people who share these values and are passionate about delivering the highest quality of care to our patients.
PRIMARY DUTIES & AREAS OF RESPONSIBILITY
Using their lived experience and understanding of what matters to ethnic minority communities in Bradford at the end of life, to inform the study design, conduct, findings and dissemination plans.
Work under the direction of the Senior Research Fellow and Principal Investigator at study sites, including community venues, to identify, consent and recruit participants into the study.
Arrange and plan their own work on a day-to-day basis within the overall demands and priorities of the project, as agreed with the Senior Research Fellow/Principal Investigator.
Organise the times and equipment for study visits.
Work independently to arrange and conduct visits with research participants
Be responsible for the collection of timely, accurate and complete data from participants: this includes interviews, workshops and observations.
Report any anomalies in data to the Senior Research Fellow/Principal Investigator
Be responsible for inputting data into the departmental database systems and producing feedback/reports as required.
Monitor the quality of data collected and advise where quality is poor
Contribute to the development of strategies to maximise response rates to studies
Contribute to the development of study materials, including translations (where applicable), standard operating procedures and participant-facing materials.
Ensure advice and information is available for relevant study sites.
Organise, participate and take notes in meetings with other members of the Project Team and ask for clarification when needed.
Attend training sessions as required
Liaise with all relevant clinical, community and research staff
Be familiar with and adhere to research protocols and standard operating procedures and work within the research governance framework (training will be provided)
Work flexibly to accommodate the requirements of the project, where possible.
Ensure the smooth running of the research project, maintaining clear and effective communication channels within the project team, study sites and participants
Any other tasks commensurate with the grade which may be required from time to time to ensure the effective running of the study
Contribute to the Yorkshire Quality and Safety Research team's collaborative and inclusive team culture.
Health and Safety/Risk Management
The jobholder must comply at all times with Bradford Teaching Hospitals NHS Trust Health and Safety policies, in particular by following agreed safe working procedures and reporting incidents using the Trust's Risk Incident Reporting System.
Equality and Diversity
The jobholder is required to abide by the Trust's policies and procedures and to actively support the Trust's commitment to equality and diversity in both employment and the delivery of services. All patients, staff and visitors must be treated equitably, with dignity and respect, taking into account their race, gender, ethnic origin, age, disability, sexuality, etc.
Training and Personal Development – Continuous Professional Development
The jobholder must take responsibility, in agreement with their line manager, for their own personal development by ensuring that Continuous Professional Development remains a priority. The jobholder will undertake all mandatory training required for the role.
Patient and Public Involvement
All staff will be expected to comply with S.242 of the NHS Act 2006.
Respect for Patient Confidentiality
The jobholder should respect patient confidentiality at all times and not divulge patient information unless sanctioned by the requirements of the role.
Environment and Sustainability
All employees have a responsibility to promote sustainability and carbon reduction within the Foundation Trust, adhering to our Sustainable Development Strategy and therefore ensuring that all our business is conducted in a sustainable manner
Infection Prevention and Control
All employees have a personal responsibility to comply with Trust and departmental Infection Prevention and Control policies to protect their own health, the health of patients, visitors and other employees, and to prevent healthcare associated infections. This includes a requirement to maintain a safe, clean and tidy work environment and to complete mandatory Infection Prevention and Control Training as provided by the Foundation Trust. All clinical staff must ensure rigorous and consistent compliance with standard infection control precautions, including hand hygiene, dress code and use of personal protective equipment and other clinical care policies and protocols applicable to infection prevention and control. Employees are required to challenge poor performance or poor practice in relation to infection prevention and report any breaches using relevant Trust procedures such as the Incident reporting system.
Safeguarding Children and Adults
All employees have a responsibility to safeguard and promote the welfare of children and adults. The postholder will be responsible for ensuring they undertake the appropriate level of training in accordance with the safeguarding policy training strategy and that they are aware of and work within the safeguarding policies of the Trust
1. COMMUNICATION & WORKING RELATIONSHIPS
Post holder will be required to work with:
* Study team
* Study partners and collaborators, including public partners
* Yorkshire Quality and Safety Research Collaborative
* Centre for Co-production and Peer Research Team
* Participants and stakeholders
* SPECIAL WORKING CONDITIONS
A flexible approach to work is required and the jobholder may be expected to work across multiple settings.