Clinical Nurse Specialist - Roald Dahl Paediatric Epilepsy
Clinical Practice and Care Management: To establish a nursing service for newly diagnosed and unstable epilepsy cases by receiving direct referrals from A&E, GPs, and establishing nurse-led epilepsy clinics for children. To offer an epilepsy service aligned with nationally recognized protocols and policies, including NICE Quality Standards, ensuring children and young people receive optimal care. To support the prevention of A&E attendances by providing follow-up after A&E visits for children with epilepsy in conjunction with the wider MDT. To facilitate the safe and early discharge of epilepsy patients from hospital through education, supervision, and follow-up clinics to prevent readmission. To establish and maintain communication networks within primary and secondary care to ensure multidisciplinary and multi-agency epilepsy education. Leadership and Management: To empower children, young people, and their families/carers through support and education. To serve as a resource for the children's community nursing team, primary care, secondary care, and other community and multidisciplinary groups. To communicate complex and sensitive information effectively, considering potential barriers to understanding. To adhere to best practice epilepsy standards as per national, regional, and professional guidelines. To participate in the operational and strategic development of the epilepsy service, both outpatient and inpatient. Education and Research: To provide accessible information and educational materials to assist patients in making informed treatment decisions. To implement educational programs tailored to the needs of children, young people, families, and healthcare professionals involved in their care. To contribute to the development of nursing practice within the Child Health Department and act as a practice supervisor for Trust and honorary contract employees. To actively participate in educational events organized by the Trust, primary care sector, and Roald Dahl's Marvellous Children's Charity.
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