Paediatric Haemoglobinopathies Clinical Nurse Specialist
The closing date is 26 February 2026
As part of Nottingham Sickle Cell programme, we are looking for a passionate and caring Paediatric Haemoglobinopathy Nurse to work jointly with our specialist teams and community services, in serving our sickle cell and thalassaemia population across our boroughs.
Do you think you can make a difference, improve service provision, and address health inequalities with an emphasis on prevention and health promotion and therefore improving our health outcomes for our service users?
This is an amazing opportunity for you to showcase your skills and to support the provision of specialist/non‑specialist paediatric haemoglobinopathy services in our community.
Main duties of the job
In conjunction with the paediatric haemoglobinopathies teams across the North of the East Midlands, the post holder will contribute to the delivery and ongoing development of a high‑quality specialist paediatric haemoglobinopathies service in the community. The post holder will provide care to children and young people across the region with sickle cell disease and thalassaemia in the home and in the hospital when required to improve standards and equity of care.
About us
With over 19,000 staff, we are one of the biggest employers in the city with a central role in supporting the health and wellbeing of our local population. We play a leading role in research, education and innovation.
Come and join our wonderful team at NUH. We are big believers in diversity and welcome new ideas to help develop our team in order to deliver world class healthcare to the vast patient populations we serve. With endless personal development opportunities available, at NUH we will endeavour to turn your job into a career!
We particularly welcome applications from people who identify as Black, Asian and Minority Ethnic, or Disabled, as we are striving to be better represented at NUH.
Job responsibilities
* Provision of health education and guidance on self‑management to prevent exacerbation of the child or young person’s condition to reduce incidences of acute episodes requiring admission to secondary care.
* Delivery of the newborn screening pathway for the service across the region, including delivery of Haemoglobinopathy results to the families of affected babies. Home visits across the region are required to support and educate parents prior to their first clinic visit.
* Enhancing compliance with preventative actions such as vaccinations and prophylactic medications.
* Addressing social and lifestyle factors that affect condition management and overall quality of life and directing to appropriate local resources.
* Building trust with children and young people and their parents/carers.
* Targeted support to high‑intensity users of secondary care including directing children and young people into existing NUH programmes for frequent ED attenders.
* In‑reach service to secondary care.
* Close working with multidisciplinary colleagues in primary, secondary, and social care to enhance continuity of care for the children and young people across the region.
* Enable implementation of individual care plans for children and young people in all settings.
Person Specification
* Degree/advanced diploma as registered children’s nurse.
Knowledge
* Knowledge of sickle cell and thalassemia.
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
Nottingham University Hospitals NHS Trusts
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