Fundraising and Marketing Committee Member
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Fundraising and Marketing Committee Member
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Join to apply for the Fundraising and Marketing Committee Member role at DEBRA UK
DEBRA was established in 1978 by Phyllis Hilton, whose daughter had Epidermolysis Bullosa (EB,) as the world’s first patient support group for people living with EB.
Today DEBRA UK is a national charity supporting 3,500+ members, which includes people living with EB, relatives, partners, or carers of someone with EB, healthcare professionals and researchers who work with EB.
Our vision is for a world where no one suffers with EB, and we will not stop until this vision becomes a reality.
We are now seeking members for our Fundraising and Marketing Committee, to inform and develop the Charity’s evolving fundraising & marketing strategy.
We are looking for individuals with either a marketing or fundraising background. The key responsibilities and person specification of the role are-
Marketing-
Responsibilities:
Advise on the charity’s communications and public engagement strategy, ensuring coherent messaging, strong brand presence, and alignment with the charity’s mission and values.
Offer strategic input on major campaigns, including fundraising, advocacy, and awareness initiatives.
Evaluate and advise on digital marketing efforts, including website, social media, and email marketing, to enhance engagement and reach.
Provide insights on emerging trends, audience behaviour, and sector dynamics to inform proactive marketing strategies and risk mitigation. Offer scrutiny and feedback on the charity’s communications performance, using data and KPIs to inform strategy and continual improvement
Person Specification:
Senior leadership experience in fundraising, philanthropy, or income generation—ideally within or adjacent to the UK charity sector.
Strategic understanding of donor behaviour, brand building, or supporter engagement.
Experience at committee or board level (charity, public, or corporate sector).
Familiarity with legal, ethical, and regulatory considerations in UK charity fundraising
Experience in setting and managing significant budgets and income targets.
Fundraising-
Responsibilities:
Provide high-level guidance on fundraising strategy across a diverse income portfolio (e.g., individual giving, philanthropy, corporate partnerships, grants, legacy).
Provide high-level input into major awareness or fundraising campaigns and support the development of strategic stakeholder communications, including for donors, funders, partners, and the general public
Leverage personal and professional networks to identify and cultivate relationships with major donors, corporate sponsors, and philanthropic partners.
Review the planning and execution of major fundraising campaigns, including capital campaigns, legacy giving, and high-value donor initiatives. Share relevant market intelligence, policy context, and fundraising trends from the wider third sector or related industries.
Person Specification:
Senior leadership experience in marketing.
Demonstrated success in leading strategic marketing transformations or brand repositioning initiatives.
Digital marketing experience including leveraging TikTok and Instagram to grow supporter base / drive donations
Good understanding of working with and leveraging relationships with influencers to grow supporter base / drive donations
Good understanding of lobbying and public affairs
Event marketing / experiential marketing experience
Time commitment
While DEBRA’s Head Office is based in Bracknell, Berkshire, our membership is spread across the UK. To be truly representative of that membership we encourage applicants from anywhere in the UK and committee members can access meetings virtually. This is an unpaid volunteer role, but any reasonable travel expenses will be reimbursed in line with the Charity’s expenses policy.
Meetings of the Fundraising and Marketing committee currently take place four times a year, each lasting between 2.5-3 hours.
How To Apply
If you think you can help steer DEBRA as we journey forward, please send your CV and a supporting statement (max 2 pages) answering these three questions -
* Why do you want to become a DEBRA Committee member?
* What skills do you believe you can bring to the committee??
* What experience will you bring to the committee ?
Please send both to recruitment@debra.co.uk
Seniority level
* Seniority level
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